I do not normally put a lot of my personal life on this blog – it’s all about the books. But right now I need to make an exception to that rule.
You see my son, who is 36, has Spinal Muscular Atrophy – if you’ve ever watched the Jerry Lewis MDA Telethon in the past, SMA is one of those diseases..
On December 23, 2016 (hours ago) the FDA approved Spinraza as a treatment drug for patients of all ages who suffer with Spinal Muscular Atrophy. What that means to us out here in the world is a drug that will be taken every day for the rest of the patient’s life… that has the ability to reverse the affects of Spinal Muscular Atrophy. It’s a treatment. Is it a cure? Depends on your interpretation of that word… to me the answer is YES.
For millions of people around the world – today is a very, very good day.
I’ve never sobbed such happy tears in my life as I am right now, even as I’m writing this.
Here is a link to the breaking news announcement that explains just why we’re so excited about this… FDA Approves Spinraza for SMA
I do not have adequate words to express my emotions right now. Unbelievable joy and thankfulness is as close as I can get.

…and… that’s a wrap.
I should apologize. But I’m not sure that I honestly need to – more like, I hope you won’t leave my feed when you see too many notices coming in from @keeperbookshelf over the next few days.
Sometimes you just gotta cut loose – so I’m heading to Vegas, baby. Gamble? Nah, I’m guaranteed to lose but there is more in Sin City than gambling. Plus the surrounding area is stunningly beautiful so some day trips are happening as well.
On this day lives changed forever. And on this day all those years ago I, like many Americans and other people around the world, vowed to never forget the lives that were taken, the men and women who walked into the chaos as others ran away. Life was changed.
I am so happy to introduce this beauty. She doesn’t have an official name just yet – we’re going to get to know her personality a bit before giving her that forever name. But I’ve been referring to her as Bella or Baby Girl because she is a beautiful baby girl puppy.
Computers hate me. Yeah. They really do. *sigh*